One thing that I wish people knew about ME/CFS is how much goes on behind the scenes that you don’t see. I’m lucky enough to be able to manage university part-time, but most people don’t know how sick I often feel on a daily basis. While I’m able to spend time with friends … Continue reading What I wish people knew about ME
A thought that I often wrestle with is the idea that I should be “trying harder” or “pushing myself.” Although I know that it’s not true, I sometimes question whether it’s my fault that I’m not getting better or am disabled. There's a common "no pain no gain" narrative that gets applied to many aspects … Continue reading On “trying harder”
Back in high school, I would spend hours at a time with my head in textbooks. Since developing chronic illnesses, productivity has looked a bit different for me. I've had to adapt and learn how to work within and around my symptoms. It took me a while to figure out what works for me, so … Continue reading Tips for studying with a chronic illness or disability.
With ME/CFS, I'm constantly trying to go about my life without exerting myself beyond what my body can recover from. Acceptance and figuring out how to pace myself has led to fewer crashes and improved my quality of life. I also have dysautonomia, a common comorbidity of ME/CFS, which makes it hard for me to … Continue reading 8 things that help me conserve energy
You will grieve. The grief and longing for your health and previous lifestyle will seem unbearable but it'll get less intense over time. When the gravity of what was happening to me became clear and I realized that I wasn’t going to quickly bounce back to my old life, I felt suffocated and fell into … Continue reading Things that I wish someone had told me when I first got sick.
Right now I’m in this weird static period of illness that not a lot of healthy people understand. I’m still sick and struggle with symptoms on a daily basis but I’ve been this way long enough that it’s starting to feel like my normal and I’ve stopped talking about how unwell I feel … Continue reading Inbetween sick and healthy.
“We devoured what research there was, we experimented on ourselves. We became our own scientists and our own doctors because we had to be. " -Jen Brea Since I got sick, my parents and I have had to persistently do our own research and experiment with different treatments, because if we hadn't, I would have … Continue reading Searching for answers with a misunderstood illness
I guess it makes sense to start off by talking about how I got here. If you had asked me where I’d be right now a year ago I would have said that I’d be studying nursing and teaching swimming/lifeguarding on weekends, not blogging about chronic illness. Anyways, here’s a (not so brief) brief history… … Continue reading The beginning
Hi Everyone, Welcome to my blog! I’m Hayden, I’m Canadian, and I’m 19. I’m a bit nervous but I created this blog because I want to write about my experience with illness with the hopes that it resonates with someone else. I’ve lived with type 1 diabetes since I was 6, and at the end … Continue reading Welcome!