8 things that help me conserve energy

With ME/CFS,  I'm constantly trying to go about my life without exerting myself beyond what my body can recover from. Acceptance and figuring out how to pace myself has led to fewer crashes and improved my quality of life. I also have dysautonomia, a common comorbidity of ME/CFS, which makes it hard for me to … Continue reading 8 things that help me conserve energy

Things that I wish someone had told me when I first got sick.

You will grieve.  The grief and longing for your health and previous lifestyle will seem unbearable but it'll get less intense over time. When the gravity of what was happening to me became clear and I realized that I wasn’t going to quickly bounce back to my old life, I felt suffocated and fell into … Continue reading Things that I wish someone had told me when I first got sick.

Searching for answers with a misunderstood illness

“We devoured what research there was, we experimented on ourselves. We became our own scientists and our own doctors because we had to be. " -Jen Brea Since I got sick, my parents and I have had to persistently do our own research and experiment with different treatments, because if we hadn't, I would have … Continue reading Searching for answers with a misunderstood illness